Project overview
Every year IFOPA, or the International Fibrodysplasia Ossificans Progressiva Association, publishes statistics about the rare genetic disease FOP. Families and care groups for FOP patients rely on IFOPA for advocacy, education and support and also fundraise for research to find a cure.
Since 2019, Shields SGF has been tasked with creating IFOPA's annual report, which traditionally had been a PDF in a long scroll infographic format. This offered some opportunities for creative data display, but we knew we could create something more engaging than a static graphic. In 2024, we pitched the idea of a interactive annual report instead.
Solution
Shifting the report onto the web allows users to engage more deeply with the data and analyze the statistics more closely. Now laid out in a multi-page experience, the information has room to breathe. Users can share the link to the report directly, as well as use it as a resource to find more information, including research publications that have the latest updates about FOP.
Results
With Shields SGF's help, IFOPA has found a new way to deliver vitally important research to their audience and evolve their content to be feel fresh and inventive. We also helped set up a FOP Registry Reports landing page for future and past reports, so that these pieces (no matter what form they take) will have a dedicated place to live on the web. Now FOP patients and their families can see a clear story in the data from multiple years of IFOPA reporting!
